Moments
Frequent medical appointments and having to drive hundreds of kilometres to be there can easily morph into a funk of self-pity, especially when the results aren't what we hope.
This week we had an overnight sleep study in Brisbane (apnoeas have improved dramatically but Andrew still needs O2 during sleep) followed by meetings with in-hospital physio, speech, OT and dietitians (he lost 500gm in the last 6 weeks eeeeeek) and then a trip to the Sunshine Coast for audiology (he still has mild conductive hearing loss in both ears). We also had fun. We saw a movie, ate sushi, ate gelato, drank good coffee, walked along South Bank, were occasionally (or maybe not so occasionally) grumpy with each other, climbed the Brisbane letters, became butterflies and the like.
When Andrew was born I made the conscious decision that whatever appointments lay ahead, I would endeavour to make the most of each moment. This life is not disability or medical setbacks, it's the moments between times, the poop emojis my son sends by SMS, lying down in the soft grass star gazing with Peter, Paul and Andrew, eating glorious croissants at the Wynnum foreshore with friends and my husband unexpectedly buying me a new bag.
Whatever life throws at you, there are too many precious moments happening right around you. Don't let them pass without soaking them up.